the journey ahead
Understanding MAS
Finding out that you or your loved one may have MAS can feel confusing and overwhelming. The following information is for you and you family to learn about MAS, its symptoms, and what you might expect following a diagnosis.
What is MAS in Still’s disease?
MAS happens as a complication of rheumatic diseases, like systemic juvenile idiopathic arthritis (sJIA) or Still’s disease. MAS does not occur in all people with Still’s disease, but it’s important to be aware of the signs of MAS. MAS is a serious condition, so it’s important to talk to a doctor right away if you notice any possible signs.
Still’s disease is a rare type of arthritis that causes inflammation in the body. There are 2 different names for Still’s disease that you may hear your doctor mention:
Systemic juvenile idiopathic arthritis (sJIA):
Refers to children with Still’s disease
Adult-onset Still’s disease (AOSD):
Refers to adults with Still’s disease
What are the symptoms of MAS in sJIA or Still's?
Early detection of MAS in Still's is critical. In someone who already has sJIA or Still’s disease, MAS can start very quickly. While everyone’s condition is different, there are some common symptoms that you and your doctor can look for:
Long-lasting fevers
Confusion or changes in alertness
Low energy level
No appetite
Seizures
Rash
Yellowing of the eyes and skin (jaundice)
Trouble breathing
Coughing
Stomachache, vomiting, or diarrhea
Swollen lymph nodes
Long-lasting fevers
Confusion or changes in alertness
Low energy level
No appetite
Seizures
Rash
Yellowing of the eyes and skin (jaundice)
Trouble breathing
Coughing
Stomachache, vomiting, or diarrhea
Swollen lymph nodes
What does MAS stand for?
macrophage activation syndrome
overactivated immune system
a group of symptoms that consistently occur together
Trouble breathing requires immediate attention; go straight to a hospital emergency room. In the event of any of the other symptoms, call your doctor or go to an emergency room.
